RESEARCH PROJECTS

Current Projects

  • A review of the patterns of treatment and survival outcomes for patients with large B-cell lymphoma in Australia
  • A review of the patterns of treatment and survival outcomes for patients with mantle cell lymphoma in Australia
  • Factors influencing outcome in Richter’s Transformation; results of a multi-centre retrospective study on Richter’s Transformation of Chronic Lymphocytic Leukemia or Small Lymphocytic Lymphoma to Diffuse Large B-cell Lymphoma or Hodgkin Lymphoma
  • Movember cancer registries platform
  • Real-world Experience of Polatuzumab Vedotin in Relapsed or Refractory Diffuse Large B Cell Lymphoma
  • T-Cell 2.0 – observational international registry of patients with newly diagnosed peripheral T-cell lymphoma.
  • Ibrutinib follow-up named patient program (NPP) analyses for CLL and MCL(now recruiting)
  • Immunoglobulin use and outcomes in Chronic lymphocytic leukaemia And Non-Hodgkin lymphoma – The ICAN Study (now recruiting)

Completed Projects

  • GELF criteria project
  • Melbourne Genomics Health Alliance Lymphoma Flagship
  • WhiMSICAL – Waldenstrӧm Macroglobulinaemia Study Involving Cart-wheeL

RESEARCH PARTNERS

The Australasian Lymphoma Alliance (ALA)

https://www.australasianlymphomaalliance.org.au/

The ALA has been in a long-term research partnership with the LaRDR. We value our collaboration with the ALA.

HoLISTIC: Hodgkin Lymphoma International Study for Individual Care

https://www.hodgkinconsortium.com/

HoLISTIC is a current LaRDR project looking to optimise patient care.

T-cell Project 2.0

https://www.tcellproject2.org/about-us/

The T-cell Project 2.0 is a current LaRDR project looking to improve understanding of Peripheral T-cell lymphoma.

RESEARCH PUBLICATIONS

2016

  • Morrison J et al, Real world management of lymphoma: Development of the Australian and New Zealand Lymphoma and Related Diseases Registry (LaRDR), Poster session presented at; HAA 2016; 2016 November 13-16; Melbourne, Australia.

2017

  • Rowsell L et al, The Lymphoma and Related Diseases Registry (LaRDR): Improving the quality of care for lymphoma patients, Poster session presented at; HAA 2017; 2017 October 29th –November 1st; Sydney, Australia.
  • Tohidi-Esfahani I et al, WhiMSICAL ( Waldenström’s aldenström’s Macroglobulinemia Study Involving CArt -whee L) Empowering patients internationally to contribute patient-derived data for observational research, Paper presented at HAA 2017; 2017 October 29th –November 1st ; Sydney, Australia.

2018

  • Tohidi-Esfahani I et al, WhiMSICAL ( Waldenström’s aldenström’s Macroglobulinemia Study Involving CA rt -whee L): A Global WM Registry for the Patient’s Voice A Global WM Registry for the Patient’s Voice, Poster session presented at : 10th International Workshop on Waldenström’s Macroglobulinemia;2018 October 11-13; New York, United States of America.
  • Tohidi-Esfahani I et al, WhiMSICAL (Waldenström’s Macroglobulinemia Study Involving CArt-wheeL): Creating robust patient-reported data for observational research, Poster session presented at : Blood 2018 ;2018 October 21-23; Brisbane,
  • Rowsell Let al, A national pathology review committee for the Lymphoma and Related Diseases Registry, Poster session presented at: RCPA Pathology Update 2018; 2018 March 2-4; Sydney, Australia.

2019

  • Tohidi-Esfahani I et al, WhiMSICAL (Waldenström’s Macroglobulinemia Study In CArt-wheeL): A Global Patient-derived Data Registry mapping treatment and quality of life data, Poster session presented at : ICML 2019 ;2019 June 18-22; Lugano, Switzerland.
  • Tohidi-Esfahani I et al, WhiMSICAL (Waldenström’s Macroglobulinemia Study In CArt-wheeL): A Global Patient-derived Data Registry mapping treatment and quality of life data, Poster session presented at : The 24th European Hematology Association Congress;2019 June 13-16; Amsterdam, The Netherlands.
  • Barraclough A et al, The ‘Real World’ Uptake and Prognostic Impact of GELF in
  • Newly Diagnosed Follicular Lymphoma: An Australasian Alliance Initiative, Poster session presented at: 61st ASH Annual Meeting; 2019 December 7-10; Florida, United States of America.
  • St George G et al, The Lymphoma and Related Diseases Registry (LaRDR): A post-pilot update, Paper presented at: Blood 2019; 2019 October 20-23; Perth, Australia.

CONFERENCE PRESENTATIONS

HAA conference poster, Sydney 2017

RCPA Pathology Update conference poster, Sydney 2018

RESEARCH PROPOSALS

De-identified registry data may be requested by completing a Data Access Form, and be accompanied by relevant ethics committee certification.

Requests from contributing clinicians, staff and academic organisations will be fulfilled without charge.  However external requests will be considered on a case-by-case basis by the LaRDR Steering Committee and may incur a fee as per the LaRDR data Access Policy.

For questions please contact us at sphpm-lymphoma@monash.edu.