Want to hear about our work at LaRDR?
Introduction to LaRDR
- Professor Stephen Opat, chair of LaRDR Steering Committee
- Background and current coverage of LaRDR
- Registry governance
- Future directions of LaRDR
LaRDR at Blood 2023
- Ms Eliza Chung, senior research officer at LaRDR
- Role and responsibility as a project manager
- LaRDR’s involvement in an academic conference
- Networking and professional development opportunities
Registry data management
- Dr Fiona Chen, senior data officer at Monash University
- Challenges in managing registry data
- Process of data cleaning, auditing and extraction for analyses
- Reporting registry data via a public-facing dashboard
Mixed-methods research in the registry
- Dr Catriona Parker, research fellow at Monash University
- Introduction of mixed-methods research
- Applying this methodology in registries
- Importance of patient perspectives in lymphoma studies
Ensuring data quality for research
- Dr Allison Barraclough, principal investigator at Fiona Stanley Hospital, chair of the Data Quality Reference Group of LaRDR
- Co-chairing the data managers meeting
- Using LaRDR data in a collaborative study
- Advice for early-career researchers to utilise registry data
Curating high-data quality data for research
- Dr Stephanie Wallwork, clinical and laboratory haematologist at Toowoomba Hospital
- High-quality data for benchmarking
- Data curation in a registry project and role as a member of the Data Quality Reference Group
- Advice for others looking for research experience
Principal investigator at regional site
- Dr Kyle Crassini, principal investigator at Coffs Harbour Health Campus
- Previous experience with ICAN and RATIONALISE studies
- Role of a site principal investigator
- Importance for a regional site to participate in LaRDR
Clinical research coordinator at private site
- Dr Emma Petley, clinical research coordinator at Epworth Healthcare
- Role of a site clinical research coordinator
- Data entry support received from LaRDR and clinicians
- Importance for a private site to participate in the registry
Data entry experience as a medical student
- Ms Niamh Waters, data entry officer at Austin Health and a Doctor of Medicine student
- Collecting and curating data for LaRDR
- Values added to her medical studies
- Advice for other medical students
Enabling research in regional/rural hospital
- Dr Joel Wight, principal investigator at Townsville Hospital
- Experience as a site principal investigator at a regional/rural site
- Use of registry data to inform practice and improve patient outcomes
- Advice for other regional/rural hospitals
Research Placement Experience
- Dr Simran Bhopal, research placement intern at LaRDR
- Designing and conducting a registry research study
- Abstract presentation at BLOOD 2022
- Research experience in a registry environment
Data contribution to international partnership
- Dr Nicholas Viiala, principal investigator at Liverpool Hospital
- Data contribution to a rare disease collaboration
- Value of registry data for benchmarking site performance
- Upcoming project proposals using registry data
Research experience as a haematology trainee
- Dr Diva Baggio, consultant haematologist
- Conducting studies in mantle cell lymphoma and chronic lymphocytic leukaemia
- Experience in publishing study results
- Advice for other early-career clinician-researchers
Research experience from basic physician to haematology registrar
- Dr Luke Wang, clinical haematology registrar at Eastern Health
- Research experience with LaRDR
- Publishing and presenting study results
- Advice for other young investigators