Want to hear about our work at LaRDR?

 Introduction to LaRDR

  • Professor Stephen Opat, chair of LaRDR Steering Committee
  • Background and current coverage of LaRDR
  • Registry governance
  • Future directions of LaRDR

LaRDR at Blood 2023 

  • Ms Eliza Chung, senior research officer at LaRDR
  • Role and responsibility as a project manager
  • LaRDR’s involvement in an academic conference
  • Networking and professional development opportunities

 Registry data management

  • Dr Fiona Chen, senior data officer at Monash University
  • Challenges in managing registry data
  • Process of data cleaning, auditing and extraction for analyses
  • Reporting registry data via a public-facing dashboard

Mixed-methods research in the registry

  • Dr Catriona Parker, research fellow at Monash University
  • Introduction of mixed-methods research
  • Applying this methodology in registries
  • Importance of patient perspectives in lymphoma studies

Ensuring data quality for research

Curating high-data quality data for research

  • Dr Stephanie Wallwork, clinical and laboratory haematologist at Toowoomba Hospital
  • High-quality data for benchmarking
  • Data curation in a registry project and role as a member of the Data Quality Reference Group
  • Advice for others looking for research experience

Principal investigator at regional site

  • Dr Kyle Crassini, principal investigator at Coffs Harbour Health Campus
  • Previous experience with ICAN and RATIONALISE studies
  • Role of a site principal investigator
  • Importance for a regional site to participate in LaRDR

Clinical research coordinator at private site

  • Dr Emma Petley, clinical research coordinator at Epworth Healthcare
  • Role of a site clinical research coordinator
  • Data entry support received from LaRDR and clinicians
  • Importance for a private site to participate in the registry

Data entry experience as a medical student

  • Ms Niamh Waters, data entry officer at Austin Health and a Doctor of Medicine student
  • Collecting and curating data for LaRDR
  • Values added to her medical studies
  • Advice for other medical students

Enabling research in regional/rural hospital

  • Dr Joel Wight, principal investigator at Townsville Hospital
  • Experience as a site principal investigator at a regional/rural site
  • Use of registry data to inform practice and improve patient outcomes
  • Advice for other regional/rural hospitals

Research Placement Experience

  • Dr Simran Bhopal, research placement intern at LaRDR
  • Designing and conducting a registry research study
  • Abstract presentation at BLOOD 2022
  • Research experience in a registry environment

Data contribution to international partnership

  • Dr Nicholas Viiala, principal investigator at Liverpool Hospital
  • Data contribution to a rare disease collaboration
  • Value of registry data for benchmarking site performance
  • Upcoming project proposals using registry data

Research experience as a haematology trainee

  • Dr Diva Baggio, consultant haematologist
  • Conducting studies in mantle cell lymphoma and chronic lymphocytic leukaemia
  • Experience in publishing study results
  • Advice for other early-career clinician-researchers

Research experience from basic physician to haematology registrar

  • Dr Luke Wang, clinical haematology registrar at Eastern Health
  • Research experience with LaRDR
  • Publishing and presenting study results
  • Advice for other young investigators